GRATITUDE is completely what I feel right now. We, of course, ALWAYS have Dray in our prayers and in our fasting. Todd and I pray for him constantly and Kate always prays for Dray to get better. We are seeing so many answers to prayers for Dray. From Kids Village (Dray's school) and what a perfect fit that is for him to actually seeing almost 7 months of cleared EEG's and steady progress in language and comprehension... I am trying to be grateful for ALL of it. Even if it all went away tomorrow. I have to celebrate each success no matter how big or small and I have to minimize the bad. Not to say, ignore it, because you certainly have to address all of the issues and disabilities that LKS brings with it. But, I find that if you make a big deal out of all his problems and issues... you make yourself and your child miserable. I know what needs to be done: special teachers and schools, sign language, being safe and aware of his social situations, extra time explaining simple concepts, medicine, doctors visits, and I could go on and on. The point is that if I sit and make those things the focus then I am a depressed mom.... he doesn't need that... nobody needs that! So, I choose to focus on all of the things that we are succeeding at.
March 11th was another cleared EEG and that was with him off of his steroids completely!! So, let's go through all of the blessings that this news brings: progress with language, weight loss (4 lbs lost), blood pressure stabilizing, so much more energy and smiles, and his social skills increasing. I can't believe how much more energy and how much happier he is with no more steroids. Yay!! Other things can be falling to pieces around me, but Dray getting better makes everything easier to handle. We just got back from California on a trip to visit Dr. Chez. He has put Dray on 2 new things to help with his recovery. I might have mentioned the supplement, L-carnosine, and now a medication called Namenda. Namenda is supposed to help with auditory processing problems. Dr. Chez has done a lot of research on how to get these little brains to heal and recover. So, we do what he tells us. He said that Namenda may cause him to be irritable, but that is the only side effect to look for. So, we'll see how he does on it and hopefully we'll have even one more piece to Dray's recovery. We had a good trip to CA and Dray made so many friends. He wraps people around his finger. The flight attendants just go crazy for him. They invited him to the cockpit to sit in the captain's chair. He LOVED it!! That's an understatement!! The pilot was even fluent in sign language. Dray and I always meet such interesting people on our trips because he is so friendly, smiley, happy, and adorable. People just love him... and Dray just loves them right back! My sweet little Dray Bear... I love him!
